Ehlers-Danlos Syndrome

What is Ehlers-Danlos Syndrome?

EDS is a genetic mutation in the connective tissue.

Symptoms of Ehlers-Danlos Syndrome

There are fourteen (14) different types of EDS, and the symptoms seen across all types include joint hypermobility, skin extensibility, and tissue fragility.

How is Ehlers-Danlos Syndrome Diagnosed?

The gold standard in diagnosing EDS includes using the criteria set forth by the Ehlers-Danlos Society. The most common type utilizes the 2017 Beighton Criteria, in which hypermobility of the fingers, elbows, knees, and spine are assessed*.

diagram of Ehlers-Danlos hypermobility test

Treatment for Ehlers-Danlos Syndrome

Treatment for Ehlers-Danlos Syndrome consists of a multimodal, multidisciplinary approach with knowledgeable and compassionate practitioners in the condition and its common comorbid conditions.

What can I expect when seen at AARA for EDS?

We are the first step in the journey of EDS, but in most cases, there will not be ongoing care with AARA. Our role in the treatment of EDS consists of a one-time consult for diagnosis, confirmation, and validation, and also the opportunity to ask questions. Based on your concerns, we then provide individualized direction on what to do next and who to see. You will receive a comprehensive guide with tips and tricks for living a full and prosperous life with EDS.

Please visit The Ehlers-Danlos Society website for more information.